My CKD Journey: From Diagnosis to Dialysis

Introduction:

In May 2010, my life took an unexpected turn. As a high school student, I was juggling classes and exams, unaware that something serious was happening inside me. It all started when my tuition teacher noticed I wasn’t walking normally and looked pale. “Ghania, you’re walking funny and you look severely pale. Please get checked,” she said. I brushed it off, thinking it wasn’t serious, unaware that this would mark the beginning of my journey with Chronic Kidney Disease (CKD).

Coming from a traditional Indian family, I hesitated to raise concerns about my health, not wanting to worry my parents. But the symptoms worsened over time.

The Diagnosis:

At first, I felt tired and chalked it up to laziness. But then more concerning symptoms emerged—breathlessness, swelling in my feet, and an unusual taste in my mouth. My energy levels plummeted, and I began losing weight rapidly. I’ll never forget the day I noticed my feet were swollen. I asked my father, “Is it normal to have swelling like this?” His expression changed immediately, and soon I found myself undergoing a series of tests.

You can learn more about CKD symptoms, causes, and treatment options from the Mayo Clinic

Initially, doctors suspected a heart condition, but after several tests, the diagnosis became clear: Chronic Kidney Disease (CKD). I was shocked. I had no idea what kidney failure meant, nor did I know what dialysis was. My parents, with tears in their eyes, explained it all. It was overwhelming.

For more detailed information on Chronic Kidney Disease (CKD) and its impact, visit the National Kidney Foundation.

The Road to Dialysis:

On May 30th, 2010, I was officially diagnosed with CKD. After ten days of treatment, trying to revive my kidneys through medication, the doctors informed us that my potassium levels were dangerously high. Immediate dialysis was necessary to avoid a heart attack. I had my first dialysis on June 10th, 2010, via a femoral catheter.

I was scared, but I remember smiling at the camera my mother held, waving to show that I was okay. This moment was the beginning of my dialysis journey.

Life After Dialysis:

After a few sessions, my temporary catheter was replaced with a permanent one, and I began thrice-weekly dialysis at a nearby center. Life changed drastically—medical appointments, strict diets, and lifestyle adjustments became the new norm. It was hard to accept that my body could no longer function the way it used to, but slowly, I found ways to adapt.

Over time, I learned that it’s okay to feel frustrated. But even in the toughest moments, I knew I had to keep going, not just for myself but for my family.

Adjusting to Life with CKD:

Living with CKD meant learning to listen to my body, manage my energy, and appreciate small victories. Whether it was completing a dialysis session or eating something I enjoyed, I began celebrating the little things. It wasn’t easy, but I gradually accepted that this was my life now, and it didn’t define me.

Even after more than a decade, every day presents new challenges, but I’m still fighting and finding ways to thrive. My journey with CKD continues, but I’ve learned that resilience is about acknowledging the highs and lows and choosing to move forward despite the obstacles.

For more information on how to adjust to life with CKD, check out Kidney Care UK’s guide.

Closing Thoughts:

As I reflect on the past decade, I can see how much this experience has shaped me. CKD has taught me resilience, patience, and the importance of support. To anyone reading this, remember that you are not alone. Whether you’re living with CKD or supporting someone who is, it’s crucial to share your story and seek help when needed.

Call to Action:

If you or someone you love is navigating life with Chronic Kidney Disease (CKD), know that there is a community ready to support you. Whether it’s through a CKD support group, medical professionals, or simply sharing your story, you’re not alone in this journey.

I’d love to hear from you—please leave a comment below, share your experiences, or suggest topics for future posts. You can also connect with me via email or through the contact form available on my site. Let’s continue spreading awareness and supporting one another in this battle against CKD.